The Search for a Cure: Battling Fatal Familial Insomnia

💤Haley and Lachlan face the terrifying reality of fatal familial insomnia, a disease that will eventually prevent them from ever sleeping again.

🔬They have traveled to San Francisco to take part in a groundbreaking research project that aims to find a cure for FFI.

🤝Haley and Lachlan meet Sonya and Erik, another couple affected by FFI, and form a bond over their shared experiences and determination to find a cure.

⏰The research project involves cognitive testing, motor skills testing, and overnight sleep studies to gather data on FFI and its progression.

💡Despite the devastating effects of FFI, Haley and Lachlan remain hopeful for a cure and actively participate in research efforts.

What is fatal familial insomnia?

—Fatal familial insomnia is a rare genetic disease that progressively deprives individuals of the ability to sleep, leading to rapid mental and physical deterioration and eventual death.

What are Haley and Lachlan's hopes for the research project?

—Haley and Lachlan hope that the research project will lead to a cure for FFI, allowing them and others affected by the disease to live a normal life free from its devastating effects.

Who else is participating in the research project?

—Sonya and Erik, another couple affected by FFI, are also participating in the research project. They share a bond with Haley and Lachlan and are working together to find a cure.

What tests are being conducted as part of the research project?

—The research project involves cognitive testing, motor skills testing, and overnight sleep studies to gather data on FFI and its progression.

Is there currently a cure for fatal familial insomnia?

—There is currently no cure for fatal familial insomnia. The research project aims to find a cure and improve understanding of the disease.

00:00Haley and Lachlan travel to San Francisco to participate in a research project for fatal familial insomnia.

03:11They meet Sonya and Erik, another couple affected by the disease, and form a bond.

10:38Haley and Lachlan undergo cognitive testing, motor skills testing, and an overnight sleep study as part of the research project.

12:48They finally meet Sonya and Erik in person and discuss their shared hopes for a cure.

13:43Haley and Lachlan express their determination to find a cure and not let fatal familial insomnia rule their lives.